When we set our objectives for the Patient Engagement Group, we decided that one of our priorities was to find ways to listen to patients directly so that we could hear what engagement between patients (patient advocacy groups and charities) and the healthcare industry means to them. This helps us gain a less ‘industry-centric’ view; it also allows us to ask a really important question from the patient perspective:
“What’s in it for them?”
Supported by Deborah Wyatt from Talkhealth Partnership Ltd, we used the talkhealth platform to reach out to patient members from across the UK. We invited them to participate in a private online discussion to share their thoughts on engagement between patients and commercial healthcare companies, to help shape the future of patient care. We were keen to hear from patients directly to capture their unique individual viewpoints and experiences. We also invited a small number of patient advocacy groups to participate.